Oliver Leaf was born August 7, 2008 in York, PA. Oliver has Alexander Disease (part of the Leukodystrophy family). Alexander disease is a slowly progressing and fatal neurodegenerative disease. It is a genetic disorder that affects the central nervous system and destroys the white matter in the brain. Oliver is doing very well right now, he walks, communicates with 1 sometimes 2 word phrases, and he understands everything that you say to him. Oliver takes antiepileptic drugs daily, he has braces for his feet and straps for his legs, and he receives physical, occupational, and speech therapy weekly. Oliver deals with being very off-balance (he falls a lot), he gets worn out very quickly, and he has major speech delays. Oliver’s biggest struggle right now is controlling his seizures. Oliver’s seizures tend to get him a life-lion ride to Hershey Med Center where he is placed in the PICU on a breathing tube. Despite Oliver’s disease and all that comes with it he is the happiest little boy I know! He always has a smile on his face and he is such a pleasant child. Oliver loves Dora, cartoons and spending time with family. Oliver has taught me to live one day at a time and take nothing for granted. Oliver leaves an impression on everyone he meets but that’s what these kids do, they touch lives. I am so very proud to be Oliver’s Mom and he is absolutely perfect in my eyes.